After parting ways I was then informed by a co-worker who works more closely with the family that he's not doing very well. He's been starting to have strokes (a common symptom late in the disease) and the doctors at our hospital are afraid there may not be very much more they can do for him.
On the way home from my meetings today ( a two-hour drive) I cried. I have never felt so much emotion toward a person I have just met in my entire life. This little boy steals your heart away. This is one of the hardest parts of my job but if a fundraiser I held has helped to buy even one piece of equipment that he used while being in the hospital, it's made it all worth it.